• 1 Post
  • 18 Comments
Joined 1 year ago
cake
Cake day: August 5th, 2023

help-circle
  • Ouch! I’m so sorry!

    For the bending backwards scale on the knees and elbows, anything past 180° counts. My knees and elbows curve back pretty far. The more severe the degree, the more severe the EDS, normally. Also, get checked for Cardiac EDS. It’s the most deadly. It’s basically EDS for veins and arteries. EDS also leads to the conditions where POTS forms and that’s its own can of worms


  • You’re in luck! I volunteer as a Disability advocate for EDS and Rising Voices of Narcolepsy.There’s a test for EDS called the Beighton Scale. If you have all 9, it’s a guarantee for the hypermobile type of it called hEDS. Even if you’ve got 5-6 on the scale, you probably have it. 9 is the worst, what I have. I’ve needed multiple surgeries and was designated as fully disabled by a judge in my early 20s.

    Having answers brings peace of mind, but what’s even more important is that your treatments will change. People with Ehlers Danlos Syndrome ABSOLUTELY CANNOT use the antibiotics in the Cipro family. It causes vein collapse, circulatory system leakage, and aortic aneurysms. It can kill you. You also can’t do most stretches, so Yoga is a no go and physical therapy can only focus on strengthening your injured areas.

    Here’s the test. Hope it helps!

    https://www.ehlers-danlos.com/assessing-joint-hypermobility/


  • Yup! Ehlers Danlos Syndrome is a BITCH. I was diagnosed in 2014 and I wish I could go back in time and scream at younger Shelby to quit gymnastics, quit cheerleading, and quit my job as a contortionist… on the outside, I look healthy and even do boudoir for a living, but my doctor says my ligaments are similar to someone in their late seventies. It’s hard when you look “normal” because everyone assumes you’re faking it.



  • I might have missed something, but who’s anti car? You’re ABSOLUTELY correct about screen time; but it is worth noting that the amount of prescriptions for night driving glasses are higher than they’ve been in history. I travel often and, even in my SUV, I can’t stand that large/superduty truck lights don’t point downward enough… It’s downright blinding at times. I can’t imagine what someone in a sedan is seeing. It’s not just passing them at night, you get hit through rear view mirrors if they’re behind you and at red lights, too, which can add up to multiple hours a week depending on your commute/schedule. The laws in the 90s were based on fluorescent brightness, and should probably be updated, that’s all. It’s not truck owners fault that the lights are designed like that.










  • Shelbyeileen@lemmy.worldtoMemes@lemmy.mlchop chop
    link
    fedilink
    arrow-up
    3
    arrow-down
    1
    ·
    1 year ago

    Yup! Human composting is only legal in Vermont, California, Washington, Oregon, Colorado right now.

    That channel gets enough wrong that I can’t support it. The biggest thing wrong that I’ve heard a million times is that you don’t have to be embalmed. If there is going to be a viewing, more than 48 hours after death, even just with next of kin; there, legally, has to be embalming to stop the biohazard risk in most states. If you want a direct burial or cremation, you don’t need to be embalmed; but if the public will be around the deceased, embalming is almost always required. Even in those that aren’t mandatory after 48 hours, there’s a massive liability waiver because of how dangerous it is, and you won’t be able to touch them without gloves.


  • It’s allowed in Colorado, Vermont, Oregon, Washington, and California, so definitely becoming more widespread. I’m not sure if you need a specific mortuary, but the one I worked in Colorado (before the law passed) would work with all sorts of programs; Science Care (body donation), organ donation programs, the companies that turned your cremated remains into diamonds/glass art/coral reefs, the ones that shot cremated remains into space or had it mixed with fireworks or tattoo ink. There are a LOT of options for you postmortem 😅